My grandma called me yesterday to see how we were doing.  i've missed her so much.  now it will be tougher to see her.  it was really good to talk to her though.  i need to try and call her more often. 

i am having a terrible brain day.  letting writing was just so frustrating today, constant mistakes.  Even though I had the ...thing... original in front of me.. maybe i should let my i should not corren ct my typing causses it sowhng up aaughh words aren't coming to me and splelling is a pin.pain.l  whatever.

ok, forget it, i'm just going to coffect correct my mistakes i9 caust is it bugging me.

so

yeah, bad brain day.  Plus, my stomach hurts so bad.  the past few days it has really given me trouble and i have had to take pain pills for it.  i know i said i wasn't going to talk about my digestive troubles anymore, not that i don't have them each and every single day of my life... because, never get rest from them.  BUT i think i will just alter that and say, i am not going to unless it is exceptionally bad. Like the past few days.  HORRIBLE pain, and no stop living in the bathroom. i really hate living in the bathroom.  HATE!  maybe i should ...no, never mind.  i was going to say paint my bathroom, yeah right, like i could do that.  then i thought of EO for a split second, nope, no way no how am i going to bother him with that, so i will just live with it.  there is nothing wrong with it as it is, but when you live in it, for so many years, and it is where you have to be due to pain and misery, it helps to change it up.  Like when I found out when I was pregnant with Steph.  The first thing i did was wallpaper and redecorate our bathroom.  I figured I couldn't handle it being so ...not pretty... while i dwelt with morning, noon and night sickness.  I really liked it after and was glad to look at something pretty while i was in there sick.

ok, so moving right along.  EO had a really rough day yesterday.  When he went to come home, he saw Mike S pull in.  When Mike asked how he was doing, EO said, he was a breath away from loosing and breaking down.  Poor B.  I ;wish i could take this pain from him.  and then, i think it is so hard on him too, because the nursing and hospice staff said she would live 2-3 days, and it has passed that. what that has done to our nerves... although Colton did warn us that some can last as long as a week.  He texted us this morning to let us know to request her to not be weighted any more.  there is no need for it and it is a terrible strain on her.  And EO has been having to schedule people to sit with her around the clock.  that in itself is a challenge.  Yesterday we were really juggling people.  Lauren ended up going in at 3am, after Becky had been there.  EO got up at 6 this morning.  He wasn't hearing the alarm, so I helped him get up and ready to go. He  took over for Lauren at 7am.  He will be there until 4 or 5, then his aunts will take over.  Then we have to find someone for the night shift.  Even though Colton works some nights, he can't stay with her as he has 1 1/2 wings of residents he tends to.  He gets some time to sit with her, but not a lot. 

so the whole scheduling thing is pretty crazy to do.  He somehow keeps it all straight. Jehovah must just be working time and a half to hold him together.  I can't count how many times a day I pray for him and the whole family to endure.  He gets home, and i just stop what i am doing and let him talk.  He doesn't talk much and he is often stopping himself.  i know he doesn't want to burden me with it, and at the same time he doesn't feel there is any point in talking about it.  He often says it won't change anything to talk about it, so why bother.  He is kind of funny about stuff sometimes.  And on days he is extra quiet.  where he just comes in and sits and watches tv... he doesn't say anything, those are the days where i say even more prayers and then i make a point of when he is sleeping to hold him most of the night.  his feel and legs move a lot while he sleeps.  not kicking, but just moving.  all these years i sew a pillow case over the area where his feet are, because he wears a hole in the sheet so so so fast.  at least a pillow case gives it triple thickness.  Well, when i hold him, he doesn't move as much.  maybe that is why my stomach is bothering me.  i always have more pain in my stomach if i sleep on my left side.  and since i have to lay on my left to hold him...  i wonder?  well, if it is the case, then i'm not going to worry about it.  i do have pain pills, so i will just do that until he starts to settle down in his sleep more.  That could be awhile.  

ok, so yesterday, when i was falling asleep and struggling so bad, i did skip lunch and went to bed.  i ended up sleeping 3 hours.  and about an hour after i woke up, EO got home.  i don't have my thyroid checked until next month.  i was so hoping i wouldn't be dealing with this fatigue when we go to the convention, but, by the looks of it, i will.  oh well.  i will just have to pray for the power beyond what is normal to stay awake. 

So much back and hip pain today.  walking is a terrible struggle today.  ok, it is most days.  I am also having more trouble with my right leg.  something else i have never told my doctors... i plan to when it gets bad enough... but i should tell them before i really get hurt.  not counting the other day.  but getting dressed putting pants, underpants, socks on... well, just as it takes a lot of concentration for me to walk, it takes a lot of concentration for me to lift my feet or stand.  sometimes i sit for awhile, and EO is always wondering what i am doing, but it is just that, it is so hard for me to think and so hard for me to muster up the mental strength to lift my feet and not fall.   my left foot isn't as hard for me to lift, but my right foot... boy, that one takes a lot of clear mental concentration.  this last stumble made me think about the fact i should tell my doc about it.  it would be the smart thing to do.  ...someday.  when we get a chance to pick up that wheel chair, i know it will help around the house on days i'm not so steady.  ok, i'll admit, every day i'm not so steady, but somedays... somedays i'm really terrible unsteady.  

ok, i need to go find what EO set aside for me for lunch.